No, this is not Camden! Just want to give you news on Camden's progress. Monday last week he went to his GI/Nutritionist appt. Again, they whipped out the "growth charts" (which we're getting tired of looking at!). And again, his weight and length are still way below the norm, though the length had increased. The nutritionist pointed out that in more than a year of seeing him, Camden's gained only one pound. I asked her what the feeding tube involved and she started to explain it and the GI dr. finished. He even brought in a little baby doll with an actual feeding tube in its belly. (Which Camden thoroughly enjoyed pulling it out each time Mommy put it in).
It actually is not as scary as it sounds and both reassured us that not only will Camden be guaranteed to gain weight, his brain function will also increase. His normal feeding routine and the foods he likes will not change. He'd probably just get a supplement at night. We would start to see improvement right away and he will only need it until his goals are accomplished...it wouldn't stay in forever. Dr. Farnhem (Nutritionist) wants to give us 2 more months before she puts in for a referral for the feeding tube.
We told this to our PT, Lisa and she sounded very relieved. She agreed it's a smart move, one that we wouldn't regret. It's just no one wants their kid to have surgery, you know? And I'm sure that Camden will get used to having something poking out of his belly...we just don't ever want him to be more uncomfortable than he might be now, or feel more different.
The geneticist appt we were supposed to have on Friday was rescheduled because they didn't have all the results back yet. The new appt. is Feb 6th and we should get the MRI results back.
I'm not sure who this kid is...I found his pic on the internet. But the feeding tube he has looks just like the one we were shown, the one Camden would be getting. We joked that it looked a lot like the nozzle on an inflatable. Actually it really does! Please continue to pray for our little guy.
